When I heard of the passing of Julianne Miszk this past Saturday, I was overwhelmed with a sense of sadness, thinking of all the trials and tribulations Julianne faced in the 22 years she graced us with her presence.
Born with Dubowitz syndrome, a rare condition that has only about 140 cases reported worldwide since 1965, Julianne had to deal with a learning disability, an uncommon bone disorder called fibrous dysplasia, surgeries and infections.
If all these challenges weren’t daunting enough, cancer struck.
In November 2016, Julianne had surgery in which a section of her fibula (calf bone) was used to replace a cancerous part of the bone in her jaw.
She spent two weeks in hospital following a 10-hour surgery and had to fight off multiple infections. Sadly, doctors discovered there was still cancer present at the margins of her jaw.
Following chemotherapy, Julianne underwent another 10-hour surgery in July 2017. Doctors took a piece of her scapula (shoulder blade) and put it in her jaw.
In June 2018, doctors determined the cancer had returned inside Julianne’s reconstructed jaw bone. They planned to take the fibula from her other leg, reconstruct with a nerve ending from the top of her foot and follow up with five weeks of radiation. Four hours into the surgery, they discovered so much scar tissue that it was too dangerous to proceed.